Some of you already know that my husband, Mr.K was diagnosed In 1999 with ALS better known as Lou Gerhig's Disease. I am my husbands caregiver, advocate, friend, wife, banker, doctor, nurse, secretary and comedian. As a caregiver I wear many hat's. I thought I would share today with you some Information you may not know about ALS.
1 Every 90 minutes someone Is diagnosed with ALS.
2 Every 90 minutes someone dies from ALS.
3 Typical life expectancy Is two to five years.
4 ALS Is one of the most expensive disease. To adequately care for someone In your home with ALS It Is an annual cost of $250 thousand dollars. Thank goodness for Insurance.
5 ALS robs you of your ability to breath, eat, swallow or move.
6 ALS does not effect your mind.
7 There Is no known cause or cure for ALS.
8 There Is only one FDA approved medication for ALS, this medication slows down the progression of ALS and typically adds 3 months on to a patients life. The cost of this medication Is $940.00 monthly. Again, thank goodness for Insurance.
I have many more facts about ALS but thought I would share just a few of them with you today. Like I said In the title, May Is national ALS awareness month so I thought I would raise some awareness on my blog of this terriable disesase.