Friday, May 8, 2009

May Is National ALS Awareness Month

Some of you already know that my husband, Mr.K was diagnosed In 1999 with ALS better known as Lou Gerhig's Disease. I am my husbands caregiver, advocate, friend, wife, banker, doctor, nurse, secretary and comedian. As a caregiver I wear many hat's.
I thought I would share today with you some Information you may not know about ALS.

1 Every 90 minutes someone Is diagnosed with ALS.

2 Every 90 minutes someone dies from ALS.

3 Typical life expectancy Is two to five years.

4 ALS Is one of the most expensive disease. To adequately care for someone In your home with ALS It Is an annual cost of $250 thousand dollars. Thank goodness for Insurance.

5 ALS robs you of your ability to breath, eat, swallow or move.

6 ALS does not effect your mind.

7 There Is no known cause or cure for ALS.

8 There Is only one FDA approved medication for ALS, this medication slows down the progression of ALS and typically adds 3 months on to a patients life.
The cost of this medication Is $940.00 monthly. Again, thank goodness for Insurance.

I have many more facts about ALS but thought I would share just a few of them with you today. Like I said In the title, May Is national ALS awareness month so I thought I would raise some awareness on my blog of this terriable disesase.

To learn more about ALS go to

Have a grand Friday,


Alicia @ boylerpf said...

I did not know this, Kathi. You are a true wearer of many hats...and an advocate for the the picture.

Christine D said...

I just LOVE your picture! Thanks for sharing all of the facts with us. Honestly, I have never heard of ALS before visiting your site. You are truely an amazing woman. You and your husband are so blessed to have eachother!!!

Splendid Little Stars said...

bless you! What a lovely photo!
I understand something of what you are experiencing as I am taking care of my elderly mother. ...similar, but also very different, I realize, since your husband is your life partner and friend.
I sympathize and send you many, many well-wishes.

Candy said...

Bless you and your hubby as you travel this road. My prayers are with you both.
Thanks for the awareness...I didn't know.


Anonymous said...

Kathi I was not aware either that May is National ALS Awareness month. Thanks so much for the facts...You are absolutely amazing! My thoughts,prayers,admiration and respect are with you both.

Just Jules said...

what a sad sad thing - to be of sound mind and weak body - it is torturous! What to say?

Thank you for finding your way to my bloggy spot and feel free to pop over anytime. Let me know ahead of time next time and I will put the coffee on first :)

Sweet Romance said...

My sweet I've told you before, you are such an inspiration to me in so many ways! Tell Dennis Miss Candice said hi and you have a wonderful Mother's Day♥♥♥ And I love this picture too, saw it on Etsy months ago in the article they did on you and Dennis.

SharDon Exclusives said...

We do not know the troubles that others are going through and it sure is an eye opener when you wrote those facts down. The pic of you and hubby is precious. Thank you for sharing with us so we can pray for the Lord to strengthen you to be that caregiver, wife, banker, etc. You are in our thoughts and prayers...sharon

MISS PEACH ~(^.^)~ said...

Dearest Kathi! Thank you for introducing your husband to us. I admire your hat collection. Please tell your Dennis that I hope he smiles each day as in the photo! My husbands name is Dennis also. Miss Peach send her best purrrrs to you and the beautiful Miss Tinkerbelle...she is feeling much better now.

twolefthands said...

Kathi, you know you are my hero, and Dennis too! You are both amazing people! I remember the photo from the Storque. It's beautiful and has love written all over it!

Nerissa Alford said...

What a beautiful picture of you two! Thank you for such an informative post. I'm a friend of Candice's & came over from her blog. You are such an inspiration.
Happy Mother's Day

Shopgirl said...

I feel tears coming as I read your husbands condition. My heart goes out to you, and to this man you love. On days when we feel sorry for ourselves, we should know how blessed we are.
Take care of you, your Mary