My sister picked me up around 11:30 am. I had Mr.K all ready for the day for his brother to sit with him while I was gone. First we had our one hour facials and that was amazing. After that we had our pedicures. It was very relaxing. We left there and went shopping for a while and then went to dinner. I arrived home around 6:30, eight phone calls later, It was me that did all the calling. I worry that he Isn't comfortable or he needs something. His brother Is so good to him, they really have a great time together. It was a perfect birthday.
As I walk towards Mr. K I wrapped my arms around him and cried along with him with an empty feeling in the pit of my stomach. Up until this point I had never seen him cry. I grabbed his hand and lead him to the couch as we sat thinking how our lives would change. We had decided not to tell anyone until we were ready to explain what ALS was without crying every time. We needed that time for us to grieve. We were losing a part of our lives that we would never get back. What would we do, how would we manage. God please give me the strength and courage to get through everyday. I remember saying that prayed several times a day. Only It was, God please give me the strength and courage to get through this day. Jump ahead ten years later. God did give me the strength, courage and guidance to make It through everyday for the last ten years. Now keep In mind that typical life expectancy Is two to five years. Looking back on that day on the couch I have learned so much over the last ten years and have done some amazing things. God gave Mr.K and I this task of making a difference, making a difference In the lives of people that struggle everyday to live with ALS.
As we pulled out of the parking lot my mind started to wonder was this going to be our last Thanksgiving and Christmas together. What would I do without Mr. K how could I live. He's the other half of my heart I can't survive without him, I know I can't. Please God don't take him from me. The car ride was silent. What was he thinking, maybe the same things I was. As we pulled Into the driveway Mr. K quietly said I will be In, I need a minute. I got out of the car and walk In the house. Wanting to know so badly If he was OK I peeked out the window. As I looked at him through the glass I could see the tears running down his face. He stayed In the car for about an hour all awhile I was thinking should I go to him, should I comfort him, does he need me. I heard the front door open and Mr.K made his way through the doorway looking at me and softly saying, I am so sorry.
After three long years Bill HB39 has been signed by the Governor of Illinois. This Is the Bill that I've been working with Senator Koehler to pass. What this means for me and others like me Is the state of Illinois will now pay me to care for my husband Instead of hired help. It Is a great victory. Here Is the original post about the Bill.
I have some very exciting news to share. Coming this fall I will have my own web site Vintage Inspired Jewelry.com. The web designer Is currently working on It but I wanted to share the first page. Right now by clicking on the enter here button It will take you right to my Etsy shop. I will still have my Etsy shop too along with the web site. I am very excited, this Is something that I've wanted to do for a long time and just didn't think I had the time. Mr. K Is the one that kept pushing me to do It.
Thank you all so very much for the lovely comments, signing up to follow my blog, twitter, face book fan page and blogging about the "win one give one giveaway". So without further delay the winner Is Candy from Rock Candy. Thank you Candy for entering my contest.
We had so much fun doing the last "Win One Give One" giveaway so that's what we will do this time too.
Here Is how this giveaway works. The winner will receive their choice of color In this necklace and for a extra bit of fun I will send another to the winners choice. You can send It to mom, teacher, grandma, your BFF, neighbor, sister, daughter, grocery store clerk, pharmacy tech, your best friend In first grade, blogger buddy anywhere you like, you get the Idea who ever you want.
Now for the rules. All you have to do Is go to my Etsy Shop and come back and comment on your favorite Item.
While perusing the Internet Saturday night I ran across someones blog, I don't even remember who It was now. They were blogging about a site they had found with thousands of craft Items. The name of the site was Save On Crafts so I clicked on the link and saw exactly what she was talking about my, my my. Here Is just a handful of goodness that I found but there Is so much more. Well of course when I saw this site I knew I had to share with all of you. Enjoy
As the doctor continued to speak It was like I was In a tunnel everything was an echo my life as I knew It was flashing before my eyes. So many questions but terrified to ask. If I didn't speak about this and told no one well It wouldn't be true. The nurse walked In and Introduced herself and said she would be the nurse that would be helping with Mr.K's care, what does that mean I said to myself helping with his care. Why Is he going to need help, what Is going to happen to my husband all questions that were running around In my head. She handed us some literature to read about A.L.S. and the doctor said he would like us to come back In two months. I remember Mr.K shaking the doctors hand and saying thank you. What was he thanking him for he just delivered his death sentence. We walk to the receptionist area and made our next appointment walk to the car and started for home.
I apologize I haven't been posting as much I've been terribly busy with Mr.K. We have had some ventilator problems.