There was a knock on the door the doctor walked In reaching out to shake both of our hands. I noticed that Mr.K wasn't able to extend his arm out to shake the doctors hand, was It happening already, have the muscles stopped working already. A wash of emotion went over me. I was scared, scared to open my mouth and speak, scared to ask any questions of fear of the answer.
The doctor examined Mr.K and ask some questions. Have you noticed any tingling In your arms or legs, any uncontrollable emotions such as laughing or crying, trouble swallowing, tripping or falling. I had briefly come across some of these symptoms while on the Internet but the truth Is It scared me so bad I clicked right out of the site. I wasn't ready to see how my once healthy husband In the prime of his life was going to leave me. Mr.K answered the doctor, yes I have notices some tingling In my arms and legs, yes I have tripped, all symptoms just verifying that yes, my husband does have ALS. The doctor told us that he was gong to prescribe a medication called Rilutek. Rilutek slows the progressing of the disease down. Studies show It prolongs your life by three months. What the doctor didn't tell us Is that the medication cost $849.00 a month. All I have to say to that Is thank goodness for Insurance. The doctor told us that he wanted to see us In two months. We made our appointment and started toward our car.
Have a fantastic week end,
Kathi
9 comments:
I'm still thinking of you and your husband's plight....hugs and prayers your way from me.
You have inspired me to be more thankful for all that I have.
God bless you both.
Kathi,
You are both in my prayers. YOU must take good care of Kathi during this heartbreaking time. It has to be so hard on your body, physically, mentally, & emtionally. We will continue to thank the Lord that you are there to help your hubby & hold you both up in prayer...
Sharon
I can't tell you how grateful I am that you are letting us share your journey. You are such an incredibly strong woman and Mr K a strong man to persevere. You're in my prayers!
Kathi ~ Your journey is long & you will both be strong ... I pray for you & think of you often. Have a great weekend. TTFN ~Marydon
Kathi, you are both in my daily prayers. Thank you for sharing with all of us and giving us the chance to pray for both of you. Hugs for both of you. sandi
You both remain in my prayers.
Marcie
Hi Kathi, I just wanted to stop by and say hello and that I have been thinking about you. You and your dear Mr K are in my thoughts and prayers. I hope you will have a peaceful week. (()) gail
OH my goodness...that is how it began, exactly, for us. They worked on a diagnosis for 4 months, but I had figured it out by the research that I did on the internet...but didn't want to say it out loud. And, yes, thanks goodness for insurance...I don't know how people afford that drug otherwise.
My heart goes out to you. sending peaceful thoughts and hugs. saying prayers.
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